22 years

Wednesday, November 7, 2018

Unrelated the rest of this post: I took this selfie at the Weston Art Gallery. It’s a work by Chris Engman called Containment and it’s a part of the FotoFocus biennial that is wrapping up in Cincinnati. I really liked “stepping in’ to this photo.

22 years ago, my oncologist and I decided to kick the proverbial can of treatment for Non-hodgkin’s Lymphoma down the street. Instead of employing chemo or radiation, it made more sense to “watch and wait” because I wasn’t symptomatic and frankly? Sometimes procrastination can be super beneficial.

I’ve been kicking that can down the street Every. Year. Since.

Today I met with a new oncologist since my last doctor of 17 odd years retired.

After reviewing my file, the new doc’s initial response was “These numbers are a clear indication that treatment should be administered.” But having met with me, he now understands the perspective of my former doctor… My case is still quite the anomaly. I’m pretty darn healthy, and some of my numbers actually IMPROVED since last year.

What to make of it?

We’re going to get some additional scans with blood work and consider everything at a glacial pace.

It’s important to note, when we decided to watch and wait way back in 1996, the idea was that more effective treatments might be around the corner.

22 years later, there are LOTS of WAY NEW approaches to treat this particular blood-borne cancer.

Oh, I should mention, it’s in style to categorize my Non-Hodgkin’s Lymphoma as CLL or Chronic Lymphocytic Leukemia these days. I thought I had both so it’s news to me. So confusing.

Last bit of interesting info from our appointment? There’s a specialist up at The James at OSU that is renowned for working with CLL patients. Maybe he’d find my case of interest? Worth a visit for sure!

Me? I feel fine. I mean, sure, I could probably feel a lot better… But I feel best when I know as much information as I possibly can. And so here I go, picking the can up to examine it before I decide if I’m going to kick it down the street again.

The good things that happened

Tuesday, November 6, 2018

Of course I voted.

And I’m having a coffee this morning, keeping my eyes on the good things that happened.

Post update, more good news:

All 19 Black Women Running for Judge in a Texas Race Won Tuesday Night

The US just elected 9 new scientists to Congress, including an ocean expert, a nurse, and a biochemist.

WIRED: Drawing the line on gerrymandering

The Cut: All the Good News From the Midterm Elections

NY Times: Sizing up the 2018 Blue Wave

Don’t give up

Monday, November 5, 2018

Sarah’s idea for a Public Service Artists sign. I pulled it together with Helvetica flush left, but when the printers got a hold of the file, something went whacky. Looks like it got squished horizontally about 80%.

This I can let go.

The hope we can restore balance and go forth with dignity for all? I’ll fight for that.

Breeders Halloween show poster

Wednesday, October 31, 2018

Sometimes I like to wear the hat of production artist. In this instance, Kyle had an idea for a poster to have for The Breeder’s Halloween show in Columbus. Take this Dr. Phibes poster, add in Kelley and wrap it up with the appropriate text.

I was hanging in the hospital with my mom while this came through, and it was the perfect easy-peasy joyful task to whisk the mind away.

Aaron and company over at DIY Printing knocked it out of the park with the fantastic five color print job. This thing messes with your eyes good.

It sold out during the opening act and lots of folks were sad, so we decided to extend the limited run this week.

It’s available on the Breeders’ store until Nov. 9th.

Another bow

Tuesday, October 30, 2018

Celebrated Casey’s birthday over a meal with close friends, enjoying the evening so much I failed to snap a photo. Which is a pity, because the lighting at Ché was really flattering.

Alas! To living in the moment.

The 1981 Sears Wish Book

Monday, October 29, 2018

The arrival of the Sears Wish Book each year was a major deal for our family. Living out on a rural farm, this was our strongest connection to physical goods of the world.

I poured over this 1981 edition for days on end—maybe months—carefully making a birthday and Christmas list.

I was 10 years old, trying my best to include selections both reasonable and outlandish.

I’m sad to hear that Sears is filing for bankruptcy. I’m angry that it’s another result of private equity saddling a company with debt and stripping it of value—lining the pockets of hedge-fund operators.

Alas, I’ll set those feelings aside and remember the joy of wishful thinking, carefully turning each page.

View a bunch more spreads on Flickr.

p 452 – If only I got that guitar or violin, I would learn to play… (We eventually got a fiddle, I did not learn.)

p 487 – That snow jet sled would make it so awesome to go down the hill and be able to steer! (Never got it, bet it was top heavy and dumb anyway.)

p 534 – I DID get the Charlie McCarthy ventriloquist doll. We removed the monocle and mom made us matching plaid shirts.

p 549 – I learned printmaking from the Great Greetings Plates.

p 555 – Brushed up on math with the Little Professor.

p 559 – Used the heck out of that Crayola Caddy.

p 562 – Paint & Swirl was a mess, but the Rock Tumblr was fun until the polishing pellets were gone.

p 617 – I could spend hours with that Winnie the Pooh cube puzzle

p 624 – I once was laying my head on the ground playing with a Stomper 4×4, trying to get the perspective of a camera shooting a movie. The battery operated truck’s tires got wound up in my hair and they parents had to use scissors to cut it out.

p 637 – Star Wars! Probably the page I looked at The Most. I wanted that AT-AT soooooo bad.

Midnight oil

Sunday, October 28, 2018

Working on the weekend

Back home

Saturday, October 20, 2018

I shouldn’t have left that last post dangling for so many days.

Mom came home with her heart back in rhythm after a week in the hospital.

Family pulled together and made sure she was never alone through her stay.

Now we sort through the path ahead, grateful and focused.

We know more than we did before.

Our love and commitment to each other is strong.

We are setting new goals, paying more attention and honoring the moment.

As for the kitty? She was in for a visit and I was able to spend the evening with friends, celebrating a birthday with a good meal.

There was more than just good this day, there was wonderful.